Providing compassionate in-home and out-patient care in Plymouth, NH

Palliative & Hospice Care Teams Helping Those with Sarcoma Cancer

July is National Sarcoma Cancer Awareness Month

July is National Sarcoma Cancer Awareness month and Pemi-Baker Hospice & Home Health (PBH&HH) would like to shed some light on this cancer and how their Palliative & Hospice team can help those affected. Sarcomas are cancers that arise from the cells that hold the body together. These could be cells related to muscles, nerves, bones, fat, tendons, cartilage, or other forms of ‘connective tissues.’ There are hundreds of different kinds of sarcomas, which come from different kinds of cells.

According to the Sarcoma Foundation of America, sarcoma accounts for 1% of adult cancers diagnosed in the United States and 15%-20% of childhood cancers. Every cancer treatment can cause side effects or changes to your body and how you feel. For many reasons, people do not experience the same side effects even when they are given the same treatment for the same type of cancer. This can make it hard to predict how you will feel during treatment.

As you prepare to start cancer treatment, it is normal to fear treatment-related side effects. It may help to know that your health care team will work to prevent and relieve side effects. Doctors call this part of cancer treatment “palliative care” or “supportive care.” It is an important part of your treatment plan, regardless of your age or the stage of disease. Pemi-Baker Hospice & Home health offers free consultations to explain the benefits of having a Palliative Care team on your side. This can be done over the phone or in person.

Coping with physical side effects

Talk with your Pemi-Baker Palliative health care team regularly about how you are feeling. If they know how you are feeling, they can find ways to relieve or manage your side effects to help you feel more comfortable and potentially keep any side effects from worsening.

Sometimes, physical side effects can last after treatment ends. Doctors call these long-term side effects. They call side effects that occur months or years after treatment, late effects. Treating long-term side effects and late effects is an important part of survivorship care.

Hospice care for cancer patients is a special kind of care that provides comfort, support, and dignity at the end of life, typically when you or your loved one’s life expectancy is six months or less. Hospice cares for the whole person, addressing physical, emotional, social, and spiritual needs.

Coping with emotional and social effects

You can have emotional and social effects after a cancer diagnosis. This may include dealing with difficult emotions, such as sadness, anxiety, or anger, or managing your stress level. Sometimes, people find it difficult to express how they feel to their loved ones. Some have found that talking to PBH&HH’s social workers or chaplain can help them develop more effective ways of coping and talking about cancer.

Caring for a loved one with cancer

Family members and friends often play an important role in taking care of a person with sarcoma. This is called being a caregiver. Caregivers can provide physical, practical, and emotional support to the patient, even if they live far away.

Caregivers may have a range of responsibilities on a daily or as-needed basis, including:

  • Providing support and encouragement
  • Talking with the health care team
  • Giving medications
  • Helping manage symptoms and side effects
  • Coordinating medical appointments
  • Providing a ride to and from appointments
  • Assisting with meals
  • Helping with household chores
  • Handling insurance and billing issues

It is important to care for yourself as well as your loved one with cancer. Caregiver burnout is very common but PBH&HH can help through their free ‘Caregiver conversation, education & support group’ held the first Wednesday of every month from 10am-11:30am. You can join the support group in person at their facility on Boulder Point Drive or by Zoom. Pre-registration is required through Guy Tillson, Chaplain at gtillson@pbhha.org or by calling 603-536-2232. We hope you will join us!

With over 55 years of experience, serving clients from 29 towns in central and northern New Hampshire, Pemi-Baker Hospice & Home Health is committed to creating healthier communities. Services include at-home healthcare (VNA), hospice and palliative care, and Community Programs including: American Red Cross CPR/AED/FA, Caregiver Support Groups, Grief and Bereavement Support Groups and Ask-A-Pemi-Baker Nurse senior center programs. Providing compassionate care with experienced staff who are trained, certified professionals in the business because of their hearts. In your time of need, we’re right where you need us.

Pemi-Baker is located at 101 Boulder Point Drive, Suite 3, Plymouth, NH. To contact us please call: 603-536-2232 or email: info@pbhha.org  Like our Facebook Page: @pemibakerhospicehomehealth

 

Palliative Care for People Living With Parkinson’s Disease

April is National Parkinson’s Awareness Month!

April is National Parkinson’s Awareness month and Pemi-Baker Hospice & Home Health would like to shine the light on how a palliative care team can help those living with Parkinson’s Disease.

Understanding Parkinson’s Disease

Parkinson’s disease is a progressive illness of the central nervous system that affects muscles and movement. It develops gradually, sometimes starting with a barely noticeable tremor in one hand. While hand tremors are the best-known sign of Parkinson’s disease, the disorder also causes muscle stiffness, slowing and jerking.

Parkinson’s disease is one of the most common disorders of the nervous system. It damages the system of nerves that the brain uses to tell the body’s muscles what to do. Brain activity is also affected by the loss of dopamine, an important chemical messenger that helps the neurons in the brain do their work.

Parkinson’s disease symptoms get worse as the condition progresses over time. Although the disease cannot be cured, medications can improve the symptoms. So can palliative care.

Understanding Palliative Care

Palliative (pronounced “pal-lee-uh-tiv”) care is specialized medical care for people with serious illness. It focuses on providing you with relief from the symptoms, pain and stress of a serious illness like Parkinson’s disease. The goal is to improve quality of life for both you and your family.

Palliative care is provided by a team of doctors, nurses, social workers and other specialists who work alongside your other doctors to provide an extra layer of support. It is appropriate at any age and at any stage of your illness. You can have it together with curative treatment.

Your palliative care team will help you to match your treatment choices to your personal needs and goals. That will allow you to have more control over your life. In all ways, the palliative care team helps you to better cope with the challenges of living with Parkinson’s disease.

Treating the Symptoms of Parkinson’s Disease–How Palliative Care Can Help

While there is no cure for Parkinson’s disease, there are a growing number of treatments that can provide you with relief from its symptoms. People with Parkinson’s disease are often prescribed a combination of levodopa and carbidopa, which helps replenish the brain’s shrinking supply of dopamine.

A new therapy uses electrodes surgically implanted inside the brain, and a small electrical device called a pulse generator to provide electrical deep brain stimulation (DBS). Parkinson’s patients also benefit from the expertise of physical, occupational and speech therapists to help them manage practical issues in their daily lives.

Other symptoms of Parkinson’s disease include a variety of motion-related issues, as well as sleep disturbances, fatigue (feeling weak or tired), constipation and other gastrointestinal problems, and low blood pressure.

Decisions about nutrition and feeding tubes eventually may become an issue, but the palliative care team will be able to provide guidance on this difficult subject. The social worker on your palliative care team can work closely with you to help you cope with the changes in your health. Sometimes just talking with an expert about what’s happening can be a great relief.

Another whole area of Parkinson’s symptoms is called cognitive decline, whereby ravages of the disease affect thinking and other uses of the brain. These include troubling mood disorders like depression and anxiety, unclear thinking, difficulty concentrating on a task and the potential emergence of dementia.

Some people become more disabled and dependent over time despite the best treatments. They may come to need so much help with the routine tasks of living that they require 24-hour care. This care may be provided at home or in a setting like assisted living, where they get the personal care they need.

Your palliative care team will talk with you about your hopes and preferences, and what may be possible for you to get the support you need to continue living life to the fullest. Because of the long course of Parkinson’s disease, the palliative care team can help you to clarify your goals and set up treatment plans far in advance. There are personal decisions you can make about how to live the life that remains, no matter what direction the disease takes-(Advance Care Planning).

Your palliative care team can help you with all this and more. The team will be your sounding board and your first line of defense against any symptoms of pain, discomfort, depression or anxiety.

The team specialists will help you and your loved ones to make both large and small decisions. They will enhance communication between you, your family and your other doctors, and help you to clarify your goals for care.

How to Get Palliative Care

If you or a loved one is facing Parkinson’s disease, ask your doctor about the benefits of a palliative care team or call Pemi-Baker Hospice & Home Health for a FREE consultation to help you make sense of the situation. PBH&HH also offers free Advance Directive help, helping you fill out your forms via Zoom. We hope you call or email us today for more information.

With over 55 years of experience, serving clients from 29 towns in central and northern New Hampshire, Pemi-Baker Hospice & Home Health is committed to creating healthier communities. Services include at-home healthcare (VNA), hospice and palliative care, and Community Programs including: American Red Cross CPR/AED/FA, Caregiver Support Groups and Grief and Loss Support Groups. Providing compassionate care with experienced staff who are trained, certified professionals in the business because of their hearts. In your time of need, we’re right where you need us.

Pemi-Baker is located at 101 Boulder Point Drive, Suite 3, Plymouth, NH. To contact us please call: 603-536-2232 or email: info@pbhha.org  Like our Facebook Page: @pemibakerhospicehomehealth

Home Care: More Than Just a Visiting Nurse

When patients leave the hospital and return home, they go from highly supportive medical environments with physicians, nurses, aides, and other professionals, to non-medical environments with informal caregiver support. Patients and caregivers must struggle to absorb confusing medical information before leaving the hospital and often providers have incomplete understandings of home environments and caregiver capabilities. Patients are largely left to themselves, expected to manage their medical conditions on their own. It is a daunting task.

This is where Pemi-Baker Hospice & Home Health (PBH&HH), can assist; supplementing visits from home care nurses, physical therapists and licensed nursing assistants.

What is the Meaning of Home Health Care?

  • Home health care is a wide range of health care services that can be given in your home for an illness or injury.
  • Home health care is usually less expensive, more convenient, and just as effective as care you get in a hospital or skilled nursing facility.

Patient safety at home is as important as patient safety in hospitals. Unsafe conditions in the home can lead to unnecessary or avoidable, expensive, re-hospitalizations. Your PBH&HH team will be a bridge of communication and care between you and your physician. Receiving home care decreases costs, improves health outcomes, and reduces hospital stays. PBH&HH helps support your family by teaching you to properly care for wounds, follow medication regimens correctly, manage durable medical equipment and keep your house free of hazards.

What Can I Expect From A Home Health Care Visit?

  • Checking your blood pressure, temperature, heart rate and breathing.
  • Making sure you understand the purpose of your medicines.
  • Teaching you or your caregiver to care for a wound or IV.
  • Creating an exercise plan to build your strength and improve balance/walking.
  • Helping you assess your pain and monitor your food intake.

PBH&HH’s primary goal is to discharge you to self or family care and avoid subsequent hospitalizations. We want you to feel confident and comfortable not only in your home but with the goal of returning back to your normal daily routines in your community. PBH&HH provides services to residents who reside in Grafton and Belknap counties, but we also accept referrals in other counties upon request. Call or contact us today to learn more.

With over 50 years of experience, serving clients from 29 towns in central and northern New Hampshire, Pemi-Baker Hospice & Home Health is committed to creating healthier communities. Services include at-home healthcare (VNA), hospice and palliative care, and Community Programs including: American Red Cross CPR/AED/FA, Caregiver Support Groups and Grief and Bereavement Support Groups. Providing compassionate care with experienced staff who are trained, certified professionals in the business because of their hearts. In your time of need, we’re right where you need us.

Pemi-Baker is located at 101 Boulder Point Drive, Suite 3, Plymouth, NH. To contact us please call: 603-536-2232 or email: info@pbhha.org   visit online: www.pbhha.org

~written by Anna Swanson

Dr. Kristi Saunders Joins Pemi-Baker Community Health

Pemi-Baker Community Health is excited to announce that Dr. Kristi Saunders, MD, has joined the team as their new Hospice Medical Director.

After working over twenty years in Family Medicine as a board certified OB/GYN, Dr. Saunders was drawn to palliative care and hospice by the desire to be more involved with her patients when facing serious illnesses and death. She became board certified in Hospice and Palliative Medicine in 2012 and since then has been educating her patients about living and embracing the normalcy of dying.

Working with other agencies in New Hampshire and recently receiving hospice help for her mother in California, has highlighted common challenges that families face. “My past experiences of different cultures, needs and desires made me realize how important it is to really have the time to listen, watch, and not treat everyone like medicine normally does…like everyone else. We are all different and need our care individualized. We spend too much time medicalizing death and not spending more time in what is the hard part…saying goodbye,” said Saunders. Pemi-Baker Community Health’s mission and philosophy of supporting their patients and families with compassionate care follows closely with Dr. Saunders’ beliefs. “Our goal is to educate families that hospice is really about living, not death. It should be about smiles, hugs and bringing people closer to acceptance as we possibly can,” said Saunders.

“Dr. Saunders has been serving our community as one of our hospice physicians since January and we are delighted that she will be taking over as Hospice Medical Director upon Dr. Arsenault’s retirement. Her commitment to the highest standards of client care blended with her knowledge and compassion make her an ideal fit for Pemi-Baker Community Health,” said Danielle Paquette-Horne, Senior Director of Home Health, Palliative Care & Hospice.

With over 50 years of experience, serving clients from 22 towns in central and northern New Hampshire, Pemi-Baker Community Health is committed to creating healthier communities. Services include at-home healthcare (VNA), hospice and palliative care, on-site physical and occupational therapy and aquatic therapy in their 90-degree therapy pool. Providing compassionate care with experienced staff who are trained, certified professionals in the business because of their hearts. In your time of need, we’re right where you need us.

PBCH is located at 101 Boulder Point Drive, Plymouth, NH. To contact us please call: 603-536-2232 or email: info@pbhha.org   Visit our website: www.pbhha.org  and like our Facebook Page: @PBCH4

~written by Anna Swanson

If You Live With a Serious Illness, Learn How to Improve Your Quality of Life

If you have cancer, lung, heart or kidney disease, Alzheimer’s, or another serious illness, you should know about a medical team that can address your symptoms and stress.

The medical team is called palliative care and they’re available in a variety of medical settings. Pemi-Baker Community Health (PBCH) offers palliative care in your home, making it easy for you and your family members to ask questions and relay concerns. Their focus is on relieving the symptoms and stress of your illness. The goal is to improve quality of life for both the patient and the family. This is done by coordinating the patient’s care as well as providing support for the caregivers if they are experiencing caregiver burnout.

Pemi-Baker Community Health’s palliative care is provided by a specially trained team of doctors, nurses and other specialists who work together with your other doctors to provide an extra layer of support. Palliative care is appropriate at any age and at any stage in your illness, and it can be provided along with curative treatment.

Is Palliative Care right for you?

Answer the following questions to determine whether palliative care might be right for you or someone close to you. Remember, you can receive palliative care at any point in your illness.

  1. Do you have one or more serious illnesses such as:
  • Cancer
  • Congestive heart failure (CHF)
  • Chronic obstructive pulmonary disease (COPD), emphysema, lung disease
  • Kidney failure
  • Liver failure
  • Neurological diseases (e.g., ALS, Parkinson’s)
  • Dementia
  1. Do you have symptoms that make it difficult to be as active as you would like to be, or impact your quality of life? These symptoms might include:
  • Pain or discomfort
  • Shortness of breath
  • Fatigue
  • Anxiety
  • Depression
  • Lack of appetite
  • Nausea
  • Constipation
  1. Have you, or someone close to you, experienced the following:
  • Difficult side effects from treatment
  • Eating problems due to a serious illness
  • Frequent emergency room visits
  • Three or more admissions to the hospital within 12 months, and with the same symptoms
  1. Do you, or someone close to you, need help with:
  • Knowing what to expect
  • Knowing what programs and resources are available
  • Making medical decisions about treatment choices/options
  • Matching your goals and values to your medical care
  • Understanding the pros and cons (benefits/burdens) of treatments (e.g., dialysis, additional cancer treatments, surgery, etc.)
  1. Do you, or someone close to you, need help with:
  • Coping with the stress of a serious illness
  • Emotional support
  • Spiritual or religious support
  • Talking with your family about your illness and what is important to you

If you answered yes to any of the questions above, you can benefit from palliative care. Ask your doctor for a palliative care referral with Pemi-Baker Community Health. Once PBCH receives the referral from your doctor they will contact you via phone to answer and ask questions and set up a meeting with you at your home.

What happens at a first visit with a palliative care team?

The first step is for the palliative care team to get to know you as a person and find out who else is important in your care. They will want to hear your narrative – who you are, what you enjoy doing, and what is most important to you in your day-to-day life. They’ll review your medical information, ask what symptoms are of concern, and how much these affect your quality of life. They’ll ask questions to see if there are any care needs at home. They may also ask questions to learn what you know about your medical condition, and what concerns you about the future so they can plan how to help over time. The team will also ask questions about who you would want to help make decisions if you aren’t able to do so for yourself. This person is called a health care agent or proxy.

For more information on how Pemi-Baker Community Health can help please call 603-536-2232 or email us at info@pbhha.org.

With over 50 years of experience, serving clients from 22 towns in central and northern New Hampshire, Pemi-Baker Community Health is committed to creating healthier communities. Services include at-home healthcare (VNA), hospice and palliative care, on-site physical and occupational therapy and aquatic therapy in their 90-degree therapy pool. Providing compassionate care with experienced staff who are trained, certified professionals in the business because of their hearts. In your time of need, we’re right where you need us.

PBCH is located at 101 Boulder Point Drive, Plymouth, NH. Visit our website: www.pbhha.org  and like our Facebook Page: @PBCH4

~written by Anna Swanson

Skilled Home Health Care: What Pemi-Baker Community Health Can Do For You

November is National Homecare Month. What better way to celebrate it than to provide information about home care services thru Pemi-Baker Community Health, and what it can offer for a loved one? As we age, we still want our independence. Many older Americans are choosing to stay in their homes longer and “age in place.” This trend allows people to remain in their family home surrounded by familiar furnishings that make them feel comfortable and safe. But as we get older, certain activities that once seemed simple can become more difficult to manage.

So when do we need skilled home health care?

Skilled home health is care given to patients at home by medically trained and licensed professionals. It is an alternative to receiving care in a nursing home or hospital to regain health and independence.

What sort of people are served by home health?

Skilled home health care clients can be recovering patients who are ill with a chronic condition like heart failure or an acute health condition like surgery for a hip replacement, or who have sustained an injury. Home health care permits earlier discharge from a hospital, reduces hospital admissions and assists with rapid recovery. It’s less expensive, more accessible, and as effective as care from a hospital or skilled nursing facility.

Skilled home health care can be for rehabilitation following a stay in the hospital or nursing home.  Patients may also be referred to Pemi-Baker Community Health by their own PCP’s for help managing a health condition. For example, your Mom might need skilled nursing after being hospitalized with a bout of pneumonia or Dad may need occupational and physical therapy when he gets home following knee surgery. The nurse can help your Mom learn to manage her medications safely and help her learn ways to manage her overall health more effectively. Occupational and physical therapy will provide training on the best exercises Dad can do to strengthen his knee so he can get back to doing the things he enjoys.

Long-term home health palliative or hospice services can be provided when your parent or loved one is suffering with a terminal illness. Our nurses and therapists work together with your doctors to provide coordinated, effective care.

How does a patient access skilled home health thru Pemi-Baker Community Health?

A referral from a physician, nurse practitioner, or physician’s assistant is necessary. If your loved one is being sent home from the hospital or nursing home, their staff physicians will typically write the referral. Your own PCP can also provide a referral.  Just let them know you would like to use Pemi-Baker Community Health, we service 22 towns in Central New Hampshire.

Who pays for skilled home health care?

Payment options for home health typically include a wide variety of insurances including Medicare, many Medicare Replacement plans, along with a whole host of private insurances.

Pemi-Baker Community Health has been in the business of ‘skilled’ home health care for over 50 years. We understand how hard it can be to get ready, travel to a certain facility to receive care and then travel back home again every time you have to go to an appointment. Home health care addresses this dilemma and Pemi-Baker Community Health can help you. There are many benefits of getting care at home and one of them is getting competent, one-on-one skilled care right where you live. Apart from this, you also save your time, energy and extra money because home health care is relatively cheaper than being institutionalized in a care facility.

Our team of responsible and reliable professionals will make sure that you or your loved ones receive the appropriate care at home. We offer skilled nursing, home health aides, physical therapy, occupational therapy, medical social services and speech therapy. We are experts in our field and we have the necessary experience to make sure you are cared for correctly. You are in safe and caring hands with Pemi-Baker Community Health.

“The people working at Pemi-Baker are terrific. I would highly recommend them for any home health care needs for yourself, family and friends. They take the time to meet your needs in a kind and sensitive way.” ~Deb

“I have had home-care after a hip replacement as well as physical therapy to recover and PT for other problems. Everyone is friendly, concerned, efficient, professional and cheerful. This organization is superior to others I have had over the years.”  ~Sheila

“Fantastic people!  Real people you can trust and feel comfortable with.  I can’t thank you enough for all the help you have given us while my husband is going thru cancer.  Thank you so much!”  ~Maxy

~Written by Anna Swanson

November is National Home Care & Hospice Month

During the month of November, the home care and hospice community honor the millions of nurses, home care aides, therapists, and social workers who make a remarkable difference for the patients and families they serve. These heroic caregivers play a central role in our health care system and in homes across the nation. To recognize their efforts, we call upon all Americans to commemorate the power of caring, both at the home and in their local communities and ask them to join with Pemi-Baker Community Health in celebrating November as Home Care and Hospice Month.

In addition, Home Care Aide Week takes place the second full week of November. Join us in honoring these compassionate, tireless workers who play an invaluable role for their clients as caregivers, companions, and friends.

“Home care and hospice nurses, therapists, aides, and other providers choose to use their lives to serve our country’s aged, disabled, and dying. This noble work deserves our recognition and praise and we celebrate November as home care and hospice month for that very reason,” said National Association for Home Care & Hospice (NAHC) President William A. Dombi.

With 10 thousand Americans turning 65 every day, the need for health care will continue to rise, and costs will continue to skyrocket. This is where home care and hospice come in. As the preferred choice for most patients, it also offers the greatest cost savings. For example, Medicare pays nearly $2,000 per day for a typical hospital stay and $450 per day for a typical nursing home stay. Meanwhile, home care costs less than $100 a day and helps many U.S. seniors remain independent at home, enriching their lives, and staying in touch with those they love.

Fast Facts

  • Home care providers will travel about 8 billion miles to deliver the best health care in the world.
  • Ninety percent of Americans want to age in place, and home care is the preferred method of health care delivery among the disabled, elderly, and chronically ill.
  • Home care provides high-quality, compassionate care to more than 5 million Americans annually.

With over 50 years of experience, serving clients from 22 towns in central and northern New Hampshire, Pemi-Baker Community Health is committed to creating healthier communities. Services include at-home healthcare (VNA), hospice and palliative care, on-site physical, occupational and aquatic therapy as well as free community educational/support groups via zoom.

~by Anna Swanson

Chaplains and the Role of Spiritual Care in Healthcare

In celebration of National Pastoral/Spiritual Care Week, Pemi-Baker Community Health would like to acknowledge and thank Guy Tillson, MDiv, MA for being our Hospice Chaplain, an integral part of our hospice team. This year’s theme is ‘Collaborative Health Care: Chaplains Complete the Picture.’  By collaborating to provide holistic interdisciplinary care, our patients and families directly benefit from his presence and spiritual care services.

What a Home Care Chaplain Does A home care chaplain is a professionally trained clergy member who supports patients and staff with spiritual and religious concerns. He or she is clinically trained to help navigate the healthcare experience. Chaplains have similar skill sets to social workers, but are specially trained to support belief systems across faiths and cultures. In order to better meet the needs of patients, chaplains receive more than 1,600 hours of training focused specifically in healthcare settings.

Chaplains act not only as spiritual counselors, but as advocates for patients and staff. Dedicated chaplains influence better decisions about care, improve clinical outcomes, and enhance staff morale. The trust they establish with patients transfers to other members of the care team, leading to better care and better outcomes.

Expert guidance during serious illness (Palliative Care) A serious illness in your family includes coping with symptoms, stress and uncertainty. The experienced team from PBCH Palliative Care provides guidance and support focused on relieving physical, emotional and spiritual suffering of the patient as well as their entire family – so patients and families can enjoy life to the fullest despite the illness.

Expert guidance during life’s final months (Hospice Care) The final months of life can be more fulfilling if you or a loved one can focus on goals and wishes. The experienced team from PBCH Hospice Care will guide you with receiving expert medical care, as well as emotional and spiritual support.

Because chaplains are unbiased and part of the care team, they are valuable in providing a safe harbor and bridging difficult conversations. Guy Tillson, Chaplain at Pemi-Baker Community Health says, “Our most fundamental human condition is when we come face-to-face with our own mortality. As chaplains, we walk into some dark places and help bring in light.”

If you have more questions about Palliative Care, Hospice Care or what a home health Chaplain can do for you and your family, please call Pemi-Baker Community Health for more information today.

~Anna Swanson

The Differences Between Palliative Care and Hospice Care Can be Confusing

Many people have heard of hospice care but they mistakenly think that it’s just a way to help cancer patients be more comfortable at the end of their lives. Fewer people have heard of palliative care, and they may have no idea what it is. The truth is that hospice and palliative care are related but used for different reasons at different times, and everyone should be well-versed in what they offer. PBCH can help clarify some points of confusion.

What is palliative care?  Palliative (pronounced pal-lee-uh-tiv) care is supportive care. It is specialized medical attention, provided by a specially trained, interdisciplinary team of medical experts to help people who have serious, often painful illnesses. The care covers management of physical and emotional pain, as well as stress relief and feelings of helplessness. The palliative care team works to provide quality of life for the patient as well as the patient’s family.

Where is palliative care provided?  Since palliative care can be offered alongside curative treatments such as chemotherapy, the services are available in a hospital setting, a clinic, a care facility or in the comfort of your own home.

Who is on the palliative care team?  A typical team would include a doctor trained in palliative care and, often, board-certified in Hospice and Palliative Medicine. Additionally, the team generally includes a palliative care nurse, a social worker, a chaplain or someone who can help with spiritual support if the patient requests it, plus a patient navigator or someone who can coordinate the process. PBCH and NANA work collaboratively with MidState Health Center’s Provider: Dr. Diane Arsenault, MD, FAAFP, HPM, HMDC.

When does palliative care start and who qualifies?  Palliative care can be provided as soon as a diagnosis is made and any time throughout an illness. It’s probably best known for cancer patients, but people with chronic obstructive pulmonary disease (COPD), heart disease, or other illnesses that cause chronic pain or discomfort can also qualify. The focus of palliative care is to provide relief from the symptoms of the disease and even the treatment side effects, as well as help with emotional and spiritual issues. Palliative care is not curative but can be used alongside curative methods such as chemotherapy.

So, what is hospice care?  Hospice care is also supportive comfort care. The focus is to provide physical, emotional, and spiritual comfort to people who are in a terminal condition, as well as for the family. The main difference with palliative care is that with hospice care, curative treatment is stopped. Through hospice, people who choose to end treatment that has perhaps stopped being helpful and often adds pain to their existence, can then navigate the end of their lives in a pain-free, dignified manner.

What hospice is not– Many people, including some doctors, will say, “Well, there’s nothing we can do now so you may as well go on hospice care.” That is misguided thinking. Hospice care is not giving up. Hospice is an active choice to provide people who have been diagnosed as terminal with a pain-free life for the time that they have left. They can enjoy family and friends in a setting of their choice. When the time comes, patients die naturally, with dignity, and with loved ones by their side if they choose.

Don’t wait too long to go on hospice– Many people actually improve once they are on hospice care because of the support they receive from the hospice team. That is why hospice workers say the most frequent comment they hear is, “We wish we hadn’t waited so long.” The misconception that going on hospice means giving up is the reason why so many families wait until the last weeks of a patient’s life to obtain help when they could have had several months of care.

People often live longer when receiving supportive comfort care. Researchers have found that people diagnosed with cancer who receive palliative and hospice care often live longer. Most choose to spend more time with family and friends. Some travel. Many plan the funeral or life celebration that matches their specific wishes. Palliative and hospice care allow each person to live the best life possible until their health takes them close to the end of their lives. When that time comes, people die comfortably and with dignity.

~Anna Swanson         

The Rewards of Being a Hospice Volunteer

While I was familiar with Hospice for many years, I only have been a hospice volunteer with Pemi Baker Hospice and Home Health (PBHHH) since October 2021.  When I retired, I began searching for volunteer work that would allow me to give back to my community.  A newsletter from PBHHH arrived in my email announcing training for hospice volunteers.  My family had experienced the need for hospice twice, once in Ohio and again in Florida.  The relief my family and I felt when the hospice volunteers arrived was beyond measure.  I want to bring the same kind of assistance to others.  PBHHH given me that opportunity by providing professional training with knowledgeable nurses, doctors, social workers and other health care professionals.  Their guidance has enabled me to meet the challenges of being s hospice volunteer, and I am very glad that I did it.

Connie C.

Pemi-Baker Community Health
2022-06-27T12:20:25-04:00

Connie C.

While I was familiar with Hospice for many years, I only have been a hospice volunteer with Pemi Baker Hospice and Home Health (PBHHH) since October 2021.  When I retired, I began searching for volunteer work that would allow me to give back to my community.  A newsletter from PBHHH arrived in my email announcing training for hospice volunteers.  My family had experienced the need for hospice twice, once in Ohio and again in Florida.  The relief my family and I felt when the hospice volunteers arrived was beyond measure.  I want to bring the same kind of assistance to others.  PBHHH given me that opportunity by providing professional training with knowledgeable nurses, doctors, social workers and other health care professionals.  Their guidance has enabled me to meet the challenges of being s hospice volunteer, and I am very glad that I did it.

You give of yourselves day & night without end!

To the Pemi-Baker Hospice Team--Words really can't express my feelings-

Your help during one of the most difficult times of my life is SO appreciated.  I'm so grateful that because of you, Doug was able to get his wish not to spend the last of his days in a hospital, but at home with those of us who loved him.

And to be constantly reassured that if I needed anything you would be there-oh my gosh-ANYTIME!  Well, you people need to know how much you are appreciated.  You give of yourselves day & night without end!  God Bless you and thank you!

Pam O.

Pemi-Baker Community Health
2020-06-11T07:31:14-04:00

Pam O.

To the Pemi-Baker Hospice Team--Words really can't express my feelings- Your help during one of the most difficult times of my life is SO appreciated.  I'm so grateful that because of you, Doug was able to get his wish not to spend the last of his days in a hospital, but at home with those of us who loved him. And to be constantly reassured that if I needed anything you would be there-oh my gosh-ANYTIME!  Well, you people need to know how much you are appreciated.  You give of yourselves day & night without end!  God Bless you and thank you!

“My home physical therapy was fantastic.”

Pemi-Baker provided very good home therapy. All their therapists were pleasant, helpful in offering suggestions for better functioning after surgery, and practiced good health protocols. They were also very prompt in showing up for scheduled appointments.

Elizabeth B.

Pemi-Baker Community Health
2019-11-07T12:26:12-05:00

Elizabeth B.

Pemi-Baker provided very good home therapy. All their therapists were pleasant, helpful in offering suggestions for better functioning after surgery, and practiced good health protocols. They were also very prompt in showing up for scheduled appointments.

“Your generosity with your time and your loving care is appreciated more than you know.”

Thank you to everyone who played a role in taking care of my mother and giving her the freedom of remaining home while suffering from dementia. Your generosity with your time and your loving care is appreciated more than you know. A special thanks goes to Macayla and Colleen, who visited her on a regular basis, and to Lauren who was helpful in connecting us with state services.

Terry W.

Pemi-Baker Community Health
2020-01-17T12:43:19-05:00

Terry W.

Thank you to everyone who played a role in taking care of my mother and giving her the freedom of remaining home while suffering from dementia. Your generosity with your time and your loving care is appreciated more than you know. A special thanks goes to Macayla and Colleen, who visited her on a regular basis, and to Lauren who was helpful in connecting us with state services.

“Everyone is so understanding supportive and kind.”

From the director to the nurses to the health care workers.  So cheerful, helpful and accommodating.  This is our second time receiving assistance from Pemi-Baker and we are very lucky to have found this amazing group!  Thank you for your excellent care and compassion.

Leila L.

Pemi-Baker Community Health
2020-01-17T13:19:24-05:00

Leila L.

From the director to the nurses to the health care workers.  So cheerful, helpful and accommodating.  This is our second time receiving assistance from Pemi-Baker and we are very lucky to have found this amazing group!  Thank you for your excellent care and compassion.

“Pemi-Baker Hospice services provided kind, professional, competent services every step of the way-and even vaccinated us all for Covid/19!””

Our primary nurse, Fred, was outstanding, and others who filled in (Cathy, Penny, Colleen) were wonderful and a credit to your organization. Fred, you were amazing, not only for mom but for my husband and I as well. I will forever be grateful for your support, wisdom, humor and kindness, all along the end of life journey for mom. I am so deeply thankful that circumstances conspired such that mom was able to die at home, and your role made that time as seamless as it could be made.

Paula W.

Pemi-Baker Community Health
2020-01-17T12:31:13-05:00

Paula W.

Our primary nurse, Fred, was outstanding, and others who filled in (Cathy, Penny, Colleen) were wonderful and a credit to your organization. Fred, you were amazing, not only for mom but for my husband and I as well. I will forever be grateful for your support, wisdom, humor and kindness, all along the end of life journey for mom. I am so deeply thankful that circumstances conspired such that mom was able to die at home, and your role made that time as seamless as it could be made.

Your courage during Covid-19 does not go unnoticed

Hello. We just wanted to take a moment and let you know how much we truly appreciate all that you do for us in these trying times. You're commitment to the health of our community is a special thing, and we know that you are working under stressful conditions due to the Covid 19 crisis. We realize that in order for you to treat those who may be ill, you are putting you're own lives and even you're own families lives in danger, and that is truly a courageous and honorable thing to do. We want you to know that it does not go unnoticed. Thank you all for all that you do!

Bryan and Renee C., and our mom Joan

Pemi-Baker Community Health
2020-06-11T06:27:43-04:00

Bryan and Renee C., and our mom Joan

Hello. We just wanted to take a moment and let you know how much we truly appreciate all that you do for us in these trying times. You're commitment to the health of our community is a special thing, and we know that you are working under stressful conditions due to the Covid 19 crisis. We realize that in order for you to treat those who may be ill, you are putting you're own lives and even you're own families lives in danger, and that is truly a courageous and honorable thing to do. We want you to know that it does not go unnoticed. Thank you all for all that you do!
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