Palliative Care for People Living With Parkinson’s Disease

April 1, 2022

April is National Parkinson’s Awareness Month!

April is National Parkinson’s Awareness month and Pemi-Baker Hospice & Home Health would like to shine the light on how a palliative care team can help those living with Parkinson’s Disease.

Understanding Parkinson’s Disease

Parkinson’s disease is a progressive illness of the central nervous system that affects muscles and movement. It develops gradually, sometimes starting with a barely noticeable tremor in one hand. While hand tremors are the best-known sign of Parkinson’s disease, the disorder also causes muscle stiffness, slowing and jerking.

Parkinson’s disease is one of the most common disorders of the nervous system. It damages the system of nerves that the brain uses to tell the body’s muscles what to do. Brain activity is also affected by the loss of dopamine, an important chemical messenger that helps the neurons in the brain do their work.

Parkinson’s disease symptoms get worse as the condition progresses over time. Although the disease cannot be cured, medications can improve the symptoms. So can palliative care.

Understanding Palliative Care

Palliative (pronounced “pal-lee-uh-tiv”) care is specialized medical care for people with serious illness. It focuses on providing you with relief from the symptoms, pain and stress of a serious illness like Parkinson’s disease. The goal is to improve quality of life for both you and your family.

Palliative care is provided by a team of doctors, nurses, social workers and other specialists who work alongside your other doctors to provide an extra layer of support. It is appropriate at any age and at any stage of your illness. You can have it together with curative treatment.

Your palliative care team will help you to match your treatment choices to your personal needs and goals. That will allow you to have more control over your life. In all ways, the palliative care team helps you to better cope with the challenges of living with Parkinson’s disease.

Treating the Symptoms of Parkinson’s Disease–How Palliative Care Can Help

While there is no cure for Parkinson’s disease, there are a growing number of treatments that can provide you with relief from its symptoms. People with Parkinson’s disease are often prescribed a combination of levodopa and carbidopa, which helps replenish the brain’s shrinking supply of dopamine.

A new therapy uses electrodes surgically implanted inside the brain, and a small electrical device called a pulse generator to provide electrical deep brain stimulation (DBS). Parkinson’s patients also benefit from the expertise of physical, occupational and speech therapists to help them manage practical issues in their daily lives.

Other symptoms of Parkinson’s disease include a variety of motion-related issues, as well as sleep disturbances, fatigue (feeling weak or tired), constipation and other gastrointestinal problems, and low blood pressure.

Decisions about nutrition and feeding tubes eventually may become an issue, but the palliative care team will be able to provide guidance on this difficult subject. The social worker on your palliative care team can work closely with you to help you cope with the changes in your health. Sometimes just talking with an expert about what’s happening can be a great relief.

Another whole area of Parkinson’s symptoms is called cognitive decline, whereby ravages of the disease affect thinking and other uses of the brain. These include troubling mood disorders like depression and anxiety, unclear thinking, difficulty concentrating on a task and the potential emergence of dementia.

Some people become more disabled and dependent over time despite the best treatments. They may come to need so much help with the routine tasks of living that they require 24-hour care. This care may be provided at home or in a setting like assisted living, where they get the personal care they need.

Your palliative care team will talk with you about your hopes and preferences, and what may be possible for you to get the support you need to continue living life to the fullest. Because of the long course of Parkinson’s disease, the palliative care team can help you to clarify your goals and set up treatment plans far in advance. There are personal decisions you can make about how to live the life that remains, no matter what direction the disease takes-(Advance Care Planning).

Your palliative care team can help you with all this and more. The team will be your sounding board and your first line of defense against any symptoms of pain, discomfort, depression or anxiety.

The team specialists will help you and your loved ones to make both large and small decisions. They will enhance communication between you, your family and your other doctors, and help you to clarify your goals for care.

How to Get Palliative Care

If you or a loved one is facing Parkinson’s disease, ask your doctor about the benefits of a palliative care team or call Pemi-Baker Hospice & Home Health for a FREE consultation to help you make sense of the situation. PBH&HH also offers free Advance Directive help, helping you fill out your forms via Zoom. We hope you call or email us today for more information.

With over 55 years of experience, serving clients from 29 towns in central and northern New Hampshire, Pemi-Baker Hospice & Home Health is committed to creating healthier communities. Services include at-home healthcare (VNA), hospice and palliative care, and Community Programs including: American Red Cross CPR/AED/FA, Caregiver Support Groups and Grief and Loss Support Groups. Providing compassionate care with experienced staff who are trained, certified professionals in the business because of their hearts. In your time of need, we’re right where you need us.

Pemi-Baker is located at 101 Boulder Point Drive, Suite 3, Plymouth, NH. To contact us please call: 603-536-2232 or email: info@pbhha.org Like our Facebook Page: @pemibakerhospicehomehealth

Pemi-Baker Community Health Improving the Lives of Parkinson’s Patients

April 23, 2021

(Plymouth)– Physical therapists at Pemi-Baker Community Health (PBCH) are movement experts who improve quality of life through hands-on care, patient education, and prescribed movement. For almost a year, PBCH’s LSVT BIG specialist, Kaity Schwartzer, PT, DPT has been helping those experiencing the symptoms of Parkinson’s disease achieve amazing results, giving them renewed hope. For National Parkinson’s Awareness month, Pemi-Baker Community Health hopes to raise awareness of what can be done NOW if you are experiencing symptoms.

While you’ve likely heard of Parkinson’s disease (PD), many people don’t know exactly what the condition is or how it manifests itself. The condition can occur when there is a loss of brain cells that produce a chemical called dopamine. The four common symptoms are: tremors, limb and trunk stiffness, the slowing down of movement and weak balance or coordination. About 500,000 people in the U.S. have Parkinson’s disease, with about 50,000 people being diagnosed each year, according to the National Institute of Neurological Disorders and Stroke.

Since PD symptoms increase over time, as they become worse, patients can have trouble with simple tasks such as getting in and out of bed or the bathtub— or even walking and talking. People with PD may also experience “freezing,” where they have extreme difficulty starting to walk again after having stopped, or difficulty stopping walking once started. This may lead to falls in the home and when out in the community. Pemi-Baker Community Health can help.

LSVT BIG

LVST BIG therapy was developed specifically for people with Parkinson’s disease and other neurological conditions. Treatments target whole body movements for activities of daily living. LSVT programs are administered by specially-trained therapists, in an intensive manner — four times per week for four weeks — and are tailored to each patient.

Therapists ask patients to move in BIG or amplified ways, whether they’re walking, buttoning shirts and pants, getting keys or change out of pockets, or writing. These lead to smoother, larger, safer movements and improved quality of life.

Today, there are over 16,000+ physical and occupational therapists trained and certified in LSVT BIG in 42 countries around the world. Here at Pemi-Baker Community Health, Kaity Schwartzer, PT, DPT is certified to administer this technique. Treatments delivered by LSVT-certified clinicians consist of the following:

Four LSVT-BIG sessions a week, for four consecutive weeks
Sessions are individual one-hour treatment sessions
Daily homework practice (all 30 days of the month)
Daily carryover assignments (all 30 days of the month)

LSVT therapy benefits

Schwartzer says LSVT BIG patients typically notice improvements in walking, getting in and out of chairs, and rolling in bed as well as overall flexibility, balance, strength and endurance. Because the program is specific to individual patients and their needs, results are based on personal goals.

As for whom it can help, Schwartzer says, “the people with Parkinson’s disease who benefit the most from LSVT BIG therapy are those with minimal to moderate symptoms but as the protocol is customizable, anyone with PD at any stage of the disease may benefit.” Schwartzer can see people who have severe PD, even those who cannot walk or stand well, as all exercises can be modified to be laying down in bed if needed. The program requires cognitive effort to change habits and reprogram the brain to make bigger, more efficient movements, so patients who have little to no cognitive problems are the most successful.

Cynthia Mathews, a LSVT BIG participant, was hoping to slow the progression of her disease and was surprised how quickly she noticed changes. “Prior to BIG program participation, my neurologist was always encouraging me to, ‘Stand up straight’, and ‘Pick up your feet’ while walking, but I saw no way to do this without thinking about what I was doing with my arms, legs, and spine every single second. It just sounded impossible. However, after only two weeks participation in LSVT BIG, I noted that I had regained the ability to walk with good posture and no shuffling of my feet with virtually no conscious effort whatsoever. My husband has commented on my ‘new’ normal walk. That has made me feel good, and has helped to maximize my motivation” said Mathews.

Assistance at Pemi-Baker Community Health

Pemi-Baker Community Health currently offers LSVT BIG therapy at their location on Boulder Point Drive in Plymouth, NH. Prospective patients need to obtain a referral from their physician specifying LSVT BIG and Pemi-Baker Community Health. The LSVT BIG program falls under the same health insurance coverage as typical physical therapy, check with your insurance provider for your specific policy coverages.